The Scleroderma Education Project is evolving and we have added research and fundraising to our mission. We need our website sclerodermainfo.org rebuilt in order to deliver the most relevant content to our visitors that include patients, families, and clinicians.
Our primary goal is to provide comprehensive, up-to-date, research-based information on systemic scleroderma diagnosis and treatments. We believe that patients who are educated about their disease can work more effectively with their team of physicians to make the best possible individual care decisions.
We are also focused on research to test a novel disease pathogenesis model that we originally proposed in 1993. If this disease model turns out to be correct, it is likely to lead to new treatments for systemic scleroderma that are more effective and much safer than current, largely ineffective, treatments that are currently being used.
I have been a serial entrepreneur over the past 40 years and worked with a lot of talented people over the years. Julian would be in the top 1% of that group. He is very skilled, very easy to work with, and did outstanding work on our new website. He was always quick to respond to requests and was always able to solve issues that were sometimes very complicated, e.g., getting the website to work well on everything from computers to phones. The fact that he is in London was never a problem, as he seems to like working late hours. :-) I would highly recommend Julian to anywhere who is trying to develop a new website.
I worked with the founder Ed Harris to construct a new website using Wordpress. Ed was very easy to work with and at the same time very thorough. The final result has resulted in positive feedback and I believe that is the result of our working together effectively and efficiently. Would highly recommend the Scleroderma Education Project to anyone else looking to volunteer with a non profit organisation.