Mission

TO FACILITATE THE DEVELOPMENT OF TREATMENTS FOR PERSONS WITH KCNT1 RELATED EPILEPSY, ARE RARE GENETIC EPILEPSY, AND TO EDUCATE AND ENGAGE THE COMMUNITY IN INITIATIVES TO ENSURE THEY ARE CLINICAL TRIAL READY

What We Do

Educate families through webinars and virtual meetings
Recruit families for studies
Build our reputation in the rare disease world
Recruit parent volunteers to help
Fundraise
Attract the interest of pharmaceutical companies and researchers
Share stories about patients who suffer from this disease
Motivate people to support our foundation